Innsamling for å få Stian fra Geilo tilbake på beina
Operasjon og behandling - så jeg kan ta livet tilbake.
(english translation at the bottom, click green button to donate)
For direct donations feel free to use IBAN: NO4923517899127
29. juni. 2019 falt jeg over styret på sykkelen og brakk nakken. På ett øyeblikk gikk jeg fra å være ekstremt aktiv og selvstendig til en rullestolbrukende tetraplegiker som kun har bruk av høyre arm. Jeg trenger nå hjelp til å fullføre selv de mest hverdagslige oppgaver. Slik situasjon er nå, er det vanskelig å sette pris på livet.
Det eneste alternativet jeg har for å bli bedre er en operasjon som stimulerer signalene i ryggmargen: Epidural elektrostimulering.
En vellykket operasjon av denne typen vil bidra til at nervesignalene fra hjernen til ryggraden når forbi skaden. Dette kan føre til at jeg gjenvinner frivillig muskelbevegelse og normalisering av mange ulike kropps- og nervefunksjoner. Resultatene av operasjonen varierer, men hittil har alle som har gjennomgått den opplevd en grad av bedring.
Del to, av den medisinske behandlingen, vil bestå av regenerativ behandling som legger til retter for mer vellykket rehabilitering, gjenvinning av motoriske og sensoriske funksjoner og seksualfunksjon. Det vil også hjelpe på de omfattende nervesmertene jeg lever med i dag.
Dessverre tilbys ikke denne behandlingen av helsevesenet i Norge. Jeg må til et anerkjent sykehus for ryggmargsskadde i Bangkok, Thailand, for å utføre den. Dette medfører store utgifter, som jeg ikke klarer alene. Etter dagens kronekurs er behandlings oppholdet og reise estimert til ca 4millioner kroner. Selve operasjonen koster kr 1 011 997.
Mitt håp for operasjonen er å bli kvitt smertefulle spasmer, kranglete mage, ustabilt blodtrykk, og å bli selvstendig igjen. Jeg ønsker å kunne jobbe mer, og bidra for andre og meg selv. Jeg ser frem til å kunne flytte mellom sengen og rullestolen. Bruke min manuelle rullestol mer. Lage mat. Gå tur med hunden. Slå den elektriske tannbørsten av og på. Vask meg selv. Kle på selv. Vær en bedre venn, kollega, og kanskje kjæreste. Forhåpentligvis kjøre på sitski og sykle på en slags sykkel. Kanskje er det også lov til å håpe på at jeg skal gå igjen. Med andre ord, håpet er å leve mer.
Jeg er mer enn villig til å gjøre alt arbeidet denne behandlingen krever av meg, og bevise for meg selv at jeg fortsatt er den samme personen som jeg var før ulykken. For at det skal bli en realitet, må jeg gjøre det verste jeg vet: spørre om hjelp. Derfor rekker jeg frem denne digitale innsamlingsbøssa, godt teipet til min fungerende arm, og ber om et pengebidrag til operasjon og økt livskvalitet.
På forhånd, tusen hjertelig takk.
Se min Facebookside Stian’s slow sprint back for mer informasjon om skade og reablitering.
Les mer i artikkelen fra Hallingdølen:
Drømmer om dette-
ENGLISH
I'm about to do the most difficult thing I know of. Ask for help. Unfortunately it is necessary as I really want a chance to take my life back. (green button to donate)
I used to be a very active, very self-sufficient, and a generous person. Someone people could trust and turn to for help. An active skier and mountain biker, and destination manager for my lovely hometown Geilo. I have a background as a semi professional snowboarder, and has lived a very active life. This was all turned upside down on June 29, 2019.
The accident and aftermath:
It was a beautiful summer day. I can honestly say I’ve never felt better in body and mind. Together with a group of friends we were riding a slow sction on a familiar trail, speed was low and nobody were taking any chances. I decided to stop, to pull out a root, from the trail, when all of a sudden I tumbled over my handlebars. I remember thinking that it was strange, the next thing I notice is my helmet hitting the ground and my body going numb. I kept thinking I was hanging upside down. It wasn't too far from the truth. I was responsive the whole time. One of my friends were touching my right arm. The pain was unbearable. The rest of my body I couldn’t feel. I was paralyzed from my neck down and couldn't move a thing.
The ambulance arrived, just 7 minutes later. My friends and ambulance personnel did everything right, and manage to stabilize me. About 45 minutes later the ambulance helicopter was there, and took me straight to Oslo for surgery. They confirmed that I had multiple factions, and a broken artery in my neck. They manage to patch me together, but my spinal cord was severely damaged. I was paralyced from my neck down.
The next day, when I woke up from surgery, I was certain I wanted to die. My life as I knew it was over. Even the surgeon told me so. When I asked for my chances to ever walk again the answer was very complicated, but very easy to understand. With the treatments, curently, available in Norway there was no chance of me ever walking, or for that sake being able to take care of myself again.
I stayed in the hospital for nine days, before my blood pressure was stable enough for me to be moved to a rehabilitation at Sunnaas. I was at Sunnaas for a little more than a year. During that time I experienced pressure wounds on my tailbone, a burn on my left butt cheek, and a whole host of other complications. There were times I wanted to die, and times almost did. Really my physical rehabilitation couldn’t begin till I got home to Geilo.
Even though I have experienced some progres, I need help to do even the most mundane things. Getting in and out of bed, getting dressed, brushing my teeth, cooking food. If you can name it I probably need help to do it. My quality of life is extremely low and rogression is slow, My only chances now to undergo invasive surgery and experimental treatments.
My hopes and mentality:
I have always been a fighter and always had to work hard to reach my goals. I take pride in being self-sufficient and being able to manage anything by my self. Because of my fighting mentality I am convinced that I will be able to live with little or no help, and maybe even walk again. I am doing everything in my power to achieve this goal, but despite my pride, I know I have to ask for help.
When I first arrived at Sunnaas, I was only able to move my right shoulder, up and down. Nothing else. Now, one and a half year later progress exceed beyond the expectations of the surgeons and doctors regarding patients with this type of spinal cord injury. I can move my right arm and upper left arm, and I have regained some core strength.
My dream and road ahead
Due to limited treatments available in Norway, I have been searching internationaly and found several facilities in countries such as Switzerland, Canada, USA, Mexico, Thailand, Panama etc. These facilities all provide various experimental and alternative treatments such as epidural stimulation, stem cell therapy and intensive/high tech training. Most importainly, they all produce successful results in the rehabilitation amongst patiens with spinal cord injury. The treatments have given them autonomic control and skin feeling, in addition to regaining control over muscles they previously did not have any control over.
Treatment decisions:
Based on information gathered and several consultations with doctors and specialist I have decided to undergo Epidural electro stimulation and stem cell treatment at a specialist hospital in Bangkok, Thailand. This treatment may give me the chance to stand and even perhaps take my first steps to the future. The hospital/rehabilitation clinic is reknown worldwide and this treatments is the newest within spinal cord injuries and providing hope to people like me.
The hospital is owned by Verita Neuro Pte. Ltd. and is powered by Verita Health care group.( https://epiduralstimulationnow.com/)
I am aware that this treatment is not the final treatment and that I will be needing more in order to ever walk again.
The treatment, surgery and facilitated training at the clinic in Bangkok are scoped out for me to cost a total of 4.2million NOK ($ 420 000). The initial sugery and treatment costs about 1.1million NOK.
This is way more than I can afford. I know my friends, family, and whole home town is behind me and are doing everything in their power to help me achieve my goal, and I really appreciate that you have taken an interest in helping as well. I would like to take this opportunity to thank any of my friends, acquaintance, and friends I haven't met yet who are willing to help me. Every little donation matters.
Donations:
All donations will be put in a fund and will only be used to pay for and provide treatments that can help me regain quality of life, self-sufficiency, take me closer to my first steps, and one day walk again.
I would also like to point out the importance of sharing this, anyway you can, to friends, family and strangers alike. In order to reach my goal I have to reach as many as possible. Together we can make a difference, and give me a new lease on life (please use the green button on top of the page to donate, and the one named "Del" to share).
If you have any questions or need any further information, please feel free to contact me at any given time. I'll answer as soon as I have the opportunity.
For direct donations feel free to use IBAN: NO4923517899127
