Hello!

 I'm organizing this fundraiser on behalf of my friends for their daughter. I'm counting on your support 🙂

The girl is 4 years old. Let's help her!!

 Batten disease, or

ceroid lipofuscinosis abbreviated as NCL2. This is a cruel disease that takes away all of children's previous skills. It causes speech regression, and over time takes away their vision, gait, and other vital functions.

However, we are not giving up because we believe that we will succeed, and that is why we must immediately move our lives to Hamburg, where Laura, after the surgery, will receive every 2 weeks infusions of an enzyme that her body does not produce, directly into her brain. Batten disease takes away 15% of brain function per year. Our only hope is that gene therapy will soon appear. We believe in the power of medicine in Germany. After enzyme therapy in Hamburg, Laura will be included in the qualification for gene therapy of the eyes and we believe that we will live to see a gene drug against the entire disease. Unfortunately, in Poland we did not receive any help from the hospital where Laura had been treated so far... After the diagnosis, we were left without any further care. However, we have enormous support from family, friends, and acquaintances, even those we have not seen for years... and we will need it even more.  It is a miracle that in our family, such a combination of parents' genes has never occurred before. As parents of little Laura, we appeal, if you notice any deviations in the development of your children, do not wait, seek help from various specialists and do not spare money for tests.